Today

Today I am angry.

Today I am emotionally exhausted.

Today I hate PKU.

The vast majority of the time, I am positive about our PKU journey. I am so thankful that I have a perfect, healthy, intelligent, happy child. Things could be SO MUCH WORSE.

This morning I watched my happy girl shake with terror as 4 people tried to hold her down so we could get blood. I watched the tech stick her twice, DIGGING around in the vein both times. Still, she would not bleed. This means we waited an hour in a germy lab and my husband missed half a day of work for NOTHING. This also means we have to drive to a different lab almost an hour away again next week to do the process all over again.

What we go through is minor in comparison to what a lot of other kids and parents go through every single day. I recognize this. I feel for those families. Right now, though, I hurt for us. I hurt for my child. I hate this.